Daylight saving is here and the days are getting longer! The sun is out, the blossoms are falling from the trees and again I’m reminded that time just keeps moving. Yesterday I got reading glasses for the first time! Argh! How did this happen? The very thing that was working well in my body, has also decided to weaken and I can no longer hassle my hubby that I have perfect vision! Another reminder that we must value our health, as the years truly are moving on and with them come new “friends” like glasses.
Despite time moving fast, weeks can feel like an eternity when you’re waiting for news. I think I’m getting better with the waiting, perhaps patience is slowly developing in my life? Perhaps…
I finally received the call I had been waiting for, telling me when my next operation would be. In two weeks I will be heading in to hospital for a lead revision on my pacemaker, where they will take the third lead out and replace it with one going into a different vein. This lead which is hitting my phrenic nerve (which connects to my diaphragm giving me ‘jolts’) is still bothering me, meaning sleep isn’t great at night. I’m gradually getting my head around another op, although with each passing day, it becomes more real again!
To explain the technical side of it all (I know some of you love that), when they put my pacemaker in 4 months ago, they used quadripolar leads, which have 4 electrodes along the end of each one. These are great, as they give multiple pacing options, meaning that if they aren’t getting great capture on one electrode, they can try another. It also means that if one (or more) of the electrodes is causing phrenic nerve stimulation (as in my case), they can generally reprogram the pacemaker to use other electrodes. Unfortunately for me, with my third left lead (the tricky one to get in), they are getting phrenic nerve capture (ie ‘jolts’) on poles (electrodes) 1 and 2 and no capture at all on poles 3 and 4 (which could be due to scar tissue). So the options to make this lead work have been few and despite turning down the voltage we are still having issues. Hence the need to do another procedure.
Or… to put it more simply -I’m still getting jolted, and the only option left is to physically move one of the leads that is on my heart to a better location 🙂
We are really praying that this next operation works! Especially that they will be able to get a new lead into the last possible vein, otherwise the next step will be open heart surgery (which they would do a few months later to limit risk of infection). I’m aware going into this that there are no guarantees, but we remain hopeful. I guess I’ll know when I wake up after the op whether they were successful or not.
So, for the next couple of weeks I’m determined to make the most of every day! I’ll continue to keep my eyes on the long term goal – a healthy and full life with a pacemaker which is working, while not being jolted! Hopefully that will help keep this next “glitch” in my life, remain in perspective!
Thanks for your love, support and prayers through this crazy journey! I’m forever thankful for the incredible people around my life, who love on us as we walk forward step by step. It truly means a lot and makes a difference. Until my next update…